Thursday, June 4, 2009

Pity Party (Semi) Over

I just have to say that I have the most wonderful friends.  You guys have really been such great pillars of strength for me and have had such good words of advice.  This is truly the hardest situation ever, but I really am trying to find all of the things that are good.  I have a smart, healthy, amazing daughter who makes me smile everyday.  I have a husband that is wonderful to me and a fantastic dad.  My son hasn't been home with me yet, but I know that he will-eventually-be home and that's definitely way better than never having him come home.  Did I mention he's also amazing.  He's growing so fast already.  However, if I have one more person ask me how early he was-I'm going to put a neon sign in his room that says "do I look like a premie?" (we have learned that nearly all babies in the NICU are premies, so that's what people assume).  In other words, he's growing weight and length wise like crazy-even though he's just getting nutrition through his blood and not even eating yet!  We're taking some of his clothes up for him to start wearing-otherwise, he'll be too big when he gets home for a lot of the clothes!  Last night, he got a swing put in his room and absolutely loves to swing!!  Please, don't get me wrong-I am so very thankful to have Spencer still with us considering all he has over come-it's just so hard not to wish things were different.  Spencer may be destined for something special and this is just part of the plan.  Artie and I are forever changed.  We owe so much to the doctors and nurses that have kept him with us.  We will become blood donors-I'm sad to say we weren't already donors-because someone else's donation saved Spencer's life.  We are also going to donate our baby stuff to the NICU because they have so many babies that need things like clothes and swings-stuff that Spencer has gotten.  I do have so much to be grateful for and I thank my friends for helping me see that:)

Thank you so much to my wonderful SMC girls-for everything!  We also couldn't get through this without our family doing what they can to help-watching Avery so Artie and I can be at the hospital together, mowing our yard, taking care of the dogs, and all of the other offers.  

Updates will come as we know anything different.  He is having blood tests less-so that's good-and, his bilirubin went down to 0.6!!  Thank you! 

6 comments:

Christine:) said...

Steph, we love you and I'm so thankful you are able to see the "good" in this horrible situation- your amazing family, and also rejoicing in each little "step" towards recovery that Spencer is showing! What an awesome thing for you to help out the NICU with the baby stuff- I can't imagine how thankful the other parents must be- especially, like you said, most of them have premature kiddos and might not have even gone out to the store to BUY baby stuff before actually having their babies!

I didn't get a chance to comment on your last post- I didn't quite know what to say other than the picture of Avery kissing Spencer took my breath away and brought tears to my eyes. We are praying SO much for you all and hope for good news to come:)

Love,
C:)

Megs said...

Way to make a difference Steph- I agree with Christine- what a wonderful idea to help other families in the NICU:)
Glad that Spencer is doing well, and you are able to dress him in his own clothes- and I think it is too cute that he loves the swing....
We continue to prayer for positive news!
Love,
Megs

Nicole said...

Ditto Megs and Christine. Sorry, I can't really type with my cast, but wanted you to know we are thinking of you guys. Love, Nicole and crew

Katie said...

Steph- so glad to hear that you are doing a bit better. So excited for Spencer to get to swing! That is great! I have never thought of donating stuff to the NICU- but maybe someday we will- thanks for the idea!

Cindy said...

Steph-
I am so happy to hear that you are happier. It broke my heart to read some of your blogs, and I so wished that I lived closer so I could be of more help emotionally and otherwise. It is so great to think about all of the blessings that you do have! We all love you!

Yay! I figured out how to comment - finally : >

Anonymous said...

It's parents like you that make the NICU an even MORE special place for future families and little ones!
I'm so happy that you are feeling blessed during this difficult time. You certainly are a stronger family unit for it!!
~Love,
Janelle