Monday, June 1, 2009

Improvement

Sorry for no updates for a few days. We have pretty much been at the hospital the last few days following surgery.

Yesterday, Spencer had a small blood transfusion to get his counts back up. They weren't dangerously low, but lower than the doctors would like-which was expected after his exchange transfusion, surgery and all of the blood tests that he has had.

The good news we have gotten recently: his abdominal scan yesterday didn't show any more air leaks; he started pooping in his ostomy yesterday; his bili was down to 1.7; his blood counts have held well today after his transfusion yesterday; and he was taken off of his ventilator this morning. 

We are feeling pretty good about his progress, considering what he is coming from. Probably the next big thing will be when he has his test to see if they want to start him on feedings-we aren't expecting this anytime really soon, though. Spencer still has 8 days on antibiotics-so we'll be in the hospital AT LEAST that much longer (after today). He is finally able to be swaddled, at nearly 2 weeks old, since he isn't on any bili lights anymore-he is one happy baby:) He was also taken off of his warming bed because he was holding his own temp-without being swaddled-which was really good too. I'm still constantly on edge, just because of everything he has had to go through, so I'm not really seeing the end of this nightmare yet, but I hope we're getting closer.

We truly can't say how grateful we are for all of the support-really it has been so amazing. I am hoping to get into my email box within the next few days-so if you haven't heard a reply from me, don't panic-I really haven't checked anything since I have been home from the hospital, other than taking the few minutes to keep everyone updated on the blog. Thank you for any positive thoughts you continue to send Spencer's way!

6 comments:

Christine:) said...

Steph, I have been thinking about you constantly! This is wonderful news!!! Even things you'd normally take for granted like being able to swaddle your own child is just HUGE after everything that Spencer has been through. Enjoy being able to cuddle him and we'll keep praying for lots more "improvement" news! We are so glad to hear this awesome news. Miss you and give both of the kiddos big hugs and kisses for us:)
P.S. Best of luck to Artie as he goes back to work this week- I can't imagine how stressful that must be with Spencer still in the NICU.
Love,
C:)

Nicole said...

What fantastic news! I hope you and Spencer are able to make up for some missed snuggle time very soon. Lots of love, Nic

Amy said...

Steph,

So glad to hear there is some good news to start off your week. We continue to think and pray for Spencer and all of you. Get your rest and hope to see you all soon :)

Love, Amy

Megs said...

Lots of love always being sent your way.... I know it is hard to think things are going to get better, but this news is definitely such a POSITIVE. Take those as they come along, and smile:)
Love,
Megs

Anonymous said...

Steph,
We are so happy to hear that Spencer is off the ventilator!! What a huge step! :) We hope you get to hold him often (with all the IV lines and monitor cords) and look at his sweet little face :) You continue to be in our prayers. (I have a whole prayer chain initiated at our church for Spencer - lots of prayers are continuing your way).
God Bless,
Janelle & Joe

Denise said...

Steph, Artie, Avery, You are in our thoughts and prayers ALL the time. Lori forwarded the email to me so I can keep up with the blog. . .it's awesome. Thanks for keeping us updated. Looks like he is getting stronger every day! Keep the faith. :) Luv Ya, Denise, Conner, Leah