We thought we might bring him home today or tomorrow. He had a rough night and this morning had blood in his stool. I apologize because I forget the medical term for it, but basically he has air in his bowels. They don't know the extent of the damage yet-another waiting game. Surgeons are on standby because if his bowel perforates, he will need immediate surgery. He is getting xrays periodically and we are basically just waiting to see if his bowel will hold up. This was a risk of the transfusion, but since he had been eating for 5 days, we thought we were out of the woods. In the meantime, we are also awaiting results on an eco because they detected a heart murmur. Yes, these are common in newborns, but given Spencer's situation, anything is possible. I really thank everyone for their encouragement. I know there comes a time when you just don't know what to say anymore. I have cried all day long. I really have moments where I think I can't go anymore. Spencer is back to having an IV-for antibiotics incase he does perforate or has an infection already and back to the stomach tube so they could pump everything out of his stomach. He will not be allowed to eat for a week-yes, that means he's at least in NICU another 7 days-if he has surgery, I'm not sure how long. So, we're back to barely holding him and him all wired up. I can't say enough how devastated we are right now, we are feeling completely numb and hallow. Avery keeps calling for her brother and my heart breaks every second. Please continue to keep him in your thoughts and prayers. We should know within the next day or so if the bowel will need surgery. Please God-let this be the last of the bad news, I need my little boy home.
6 comments:
No words I know can help right now... and I don't have any good words to make anything better.
Because I know anything I say- won't.
Just know you are all in our thoughts and prayers- we are lifting you all up constantly and pray for Spencer to climb this next mountain he is facing.....
All of our love,
Ben, Megs, Luke and Drew
I am so saddened to hear of Spencer's "difficult" entry into the world. He is very blessed to have such loving and STRONG parents. While they make not look like it, little ones can endure unimaginable procedures and surgeries. I know because my aunt has been a NICU nurse for the past 30 years and the stories she has shared with my about these tiny miracles are amazing - There are definitely many more happy stories than unhappy. Please know that you are in Stephen's and my prayers every night and every morning. Stay strong and get well little Spencer!
Much Love, Amy
Steph,
I don't know what to say except that I am so sorry you are going through this right now. At least they "caught" the blood early and are able to be on top of it now. I will also be praying for Spencer's echo- just think, when he is able to come home, he'll have already had a thorough head-to-toe workup so hopefully there won't be any more questions or concerns.
I am praying for Spencer's little body and that it is able to fully heal quickly, and for strength for you and Artie. You are doing such an amazing job taking care of both of your kids, and they cannot be more loved than they are by you two.
I miss you!
Love,
C:)
I know there aren't words to make this better (though I wish there were and that I had them). Spencer and Avery are so luck to have you and Artie as their parents, in their corner, fighting for them. We will continue to pray for Spencer and send positive vibes your way. Love, Nicole, Jim, Josephine, and Genevieve
Steph,
How horrible. I pray pray pray you do not have to journey down the road to having bowel removed. That would completely be devastating. I will keep your little one in my prayers. And I pray that you are given strength and peace.
Love you babe,
Janelle
Still thinking and praying for you guys all the time!! Hang in there.
Love,
C:)
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